Patient Groups

Roche is committed to partnering with patient organisations for the benefit of patients in a way that is compliant with the ABPI Code of Practice. This includes the need to declare the nature and amount of sponsorship publicly and to accurately reflect the nature of Roche’s involvement on all materials relating to working with patient organisations.

In the UK, Roche's pharmaceuticals business works with patient organisations in three ways:

Core financial sponsorship: Direct financial hands off support only intended for the human and physical resources needed to run the organisation and/or any activity that the patient group decides to carry out without reference to Roche, which might include materials and activities and is not permitted to be used for any other non-educational or social activities of the organization
Sponsorship of arm’s length project or activity: Direct financial support where there is no Roche editorial or organisational involvement; the patient group retains sole ownership and control of the project or activity e.g. sponsorship to attend a conference or to produce patient literature.
‘Hands-on’ collaborative project or activity: Direct engagement as a partner of a patient group on a specific educational project to which both parties contribute. The patient organisation retains ownership and editorial control over the work. However, Roche will review work emanating from any collaborative activity to ensure factual accuracy, balance and compliance with the Code of Practice. E.g. a report which Roche and the patient group have collaborated to produce and have both agreed and worked upon the content.

In 2011 Roche is providing core financial sponsorship and/or sponsorship of specific arm’s length projects or activity to the UK patient organisations listed below, along with the amount of sponsorship provided. Details of additional ‘hands-on’ collaborative projects or activities can be found by clicking on the link next to each relevant patient organisation.

Information is accurate as at November 2011, content is updated quarterly. If you require more information, please contact the Public Affairs team.

Supported UK patient organisations

Organisation	Type of sponsorship	Amount of sponsorship
Arthritis and Muscoskeletal Alliance	Core financial sponsorship Sponsorship of commissioning workshop Hands on collaborative activities	£25,000 £10,000 further details
Arthritis Care	Hands on collaborative activities only	further details
Beating Bowel Cancer	Core financial sponsorship Sponsorship of Be Loud Be Clear meeting Reprint of advanced cancer leaflets Sponsorship of spring newsletter Hands on collaborative activities	£8,000 £8,000 £10,000 £9,000 further details
Breakthrough Breast Cancer	Sponsorship for educational meeting Sponsorship for parliamentary reception Sponsorship for Westminster Fly-In Sponsorship to attend breast cancer conference	£1,200 £4,000 £15,000 £6,000
Breast Cancer Care	Sponsorship for parliamentary activities Sponsorship to attend breast cancer conference	£5,000 £2,000
Bowel Cancer UK	Core financial sponsorship Sponsorship for genetic surveillance programme Sponsorship for bowel cancer advisory service Sponsorship to attend European patient meeting Hands on collaborative activities	£15,000 £5,000 £15,000 £6,500 further details
Brain Tumor UK	Core financial sponsorship	£250
Cancer Campaigning group	Core financial sponsorship	£15,000
Cystic Fibrosis Trust	Donation for patient speaking at Roche internal meeting Donation for representative speaking at Roche internal meeting	£250 £250
Chartered Society of Physiotherapy	Hands on collaborative activity only	further details
CLLSA	Core financial sponsorship Sponsorship to attend annual conference Sponsorship for educational patient meetings	£9,000 £4,000 £2,000
Heart UK	Core financial sponsorship Hands on collaborative activity	£3,000 further details
Hepatitis C Trust	Hands on collaborative activity	further details
Leukaemia Care	Core financial sponsorship Sponsorship for printing patient journal Sponsorship for volunteer & patients conferences Hands on collaborative activity	£15,000 £5,000 £5,000 further details
Lymphoma Association	Sponsorship for patient information leaflet reprinting Sponsorship for annual patient conference Sponsorship for website development Sponsorship for clinical engagement programme Sponsorship of educational meetings	£6,000 £6,000 £4,345 £4,650 £8,000
Macmillan Cancer Support	Sponsorship for Britain Against Cancer	£4,500
Mens Health Forum	Sponsorship for Blue September campaign	£10,000
National Rheumatoid Arthritis Society	Core financial sponsorship Hands on collaborative activities	£25,000 further details
Ovacome	Sponsorship for mailing to clinicians Hands on collaborative activities	£4,000 further details
Rarer Cancers Foundation	Core financial sponsorship Hands on collaborative activities	£32,000 further details
Roy Castle Lung Cancer Foundation	Hands on collaborative activities	further details
Skcins	Core financial sponsorship	£5,000
UK Lung Cancer Coalition	Core financial sponsorship	£20,000